Sunday, June 21, 2009

Our Next Get-Together!

July 25th 2009 1:00 pm

Thank you Laurie Heiland-Crouch and Family for Hosting!

392 Brennan Rd. Ilion, NY

Please bring your own food and drink- a BBQ is available along with an above ground pool!

Please R.S.V.P. to either or 315-457-6163

Tuesday, June 16, 2009


Welcome to the official CNY/Upstate New York Rett Syndrome blog. I plan to post breaking news, information about upcoming events, fundraisers, and basically anything related to Rett Syndrome happenings in our neck of the woods. There may not be frequent posts but I'll do my best. Thanks for stopping by!